Their story will now be featured in an upcoming documentary outlining their medical battle.
In the documentary while Erin fought to beat cancer - her mom Jeni began to worry about how their family would be able to afford the costly treatment.
"Her doctor said because of the affordable care act she will be ok insurance will continue to cover it that is why she's alive today," said Jeni.
And that's what drives Erin's older sister, Annie, to fight for access to proper health coverage for everyone.
She meets and writes with lawmakers as she writes and meets with lawmakers.
"People say the affordable care act is failing, it's not. It's working," said Annie.
The Potter family is hoping President Trumps includes pre-existing conditions in the bill because there is a good chance that Erin will need therapy again at some point in her lifetime and having coverage is essential.
But right now those pre-exisiting conditions are part of the most recent GOP Health care bill.
A vote has not yet been scheduled.